Resources

GAPS
Ellie Belly (FPIES)
Loving Our Guts

Neurodevelopment
The Institutes for the Achievement of Human Potential
Down Syndrome: A Day to Day Guide (this site is great for anyone dealing with developmental delays)
Einstein Syndrome
Unlimited Potential message board

Inspiration
John Marrs

Commiseration
Dispatches from the Land of Not OK
Amsterdam International (a sequel to Welcome to Holland)
Moving Past Shame
If I Knew Then What I Know Now
What's the Big Deal?

Recipes
Baby formula

Books
Gut and Psychology Syndrome

Disability is Natural

Special Needs Kids Eat Right - A decent introduction to rebooting gut health. My review here.

What to Do About Your Brain-Injured Child - This book is largely a history of IAHP. While the details are a little tedious at times, overall this book will give you hope.

How Smart is Your Baby? - This is a poorly-named book that mainstreams the ideas from IAHP. Despite the poor name (which IAHP points out was the publisher's idea) the book is a wealth of great information for stimulating your infant and young child.

Expecting Adam - Martha Beck is nothing if not honest. She and her husband were incredibly driven Harvard PhD candidates when they found out they were expecting a baby with Down syndrome. During the time period that they are expecting Adam they come to realize that Harvard isn't what they want they after all. Beck shares her unusual spiritual experiences during this time which ultimately guide the couple towards continuing the pregnancy. Although my own religious beliefs are very different from Beck's, I do agree that  many spiritual benefits come from parenting a child with different needs.

Bloom - I had to read this book after watching the moving trailer. There are a lot of Kelle Hampton fans out there... and there are a lot of people who don't care for her. I fall somewhere in the middle. The only parts of the book that I enjoyed were the birth story and the discussion about siblings. Otherwise, I can't believe that Kelle got a book deal for a story about essentially nothing. She's had a remarkably easy go of it compared to many people. She also frequently refers to herself as a "rock star" and for those of us who have walked a similar path, it seems apparent that Kelle seems very open but is in fact holding back many details. She maintains a careful image that I can't help but to find disingenuous. I don't recommend this book for anyone who has had a child with serious medical issues; it won't tell you anything you don't know and it won't help you through your experience. I think this book is best for those who don't know much about children with different needs as Kelle certainly paints a rosy picture.

Roadmap to Holland

Gifts

The Year My Son and I Were Born

Websites
GAPS Kids - support for parents of GAPS children
Food Allergy - a paper by Dr. Natasha Campbell-McBride that explains some GAPS basics

No comments:

Post a Comment