Thursday, September 27, 2012


Juliana is a bookworm - a total fanatic for books. When I taught her the sign for "book" she instantly caught on and began using it to her advantage. When I ask her if she is ready for bed, she always starts to sign "book!"

We have two set reading times daily: before naptime and before bed. But I think she would be happy to read books all day long.


  1. My son is a bookworm too! I love that we share this hobby!

    I've really enjoyed reading your family's story. You have a great voice. I didn't know about Kabuki Syndrome. It seems that the lists of illnesses go on forever.

    I really liked your post about choosing the right therapists! I completely agree with you. I'm glad you found a team you love.

    By the way, most of the therapy can be learned and implemented at home. The therapists main job is to re-evaluate function regularly and adjust treatment to reflect changing needs. Eventually, therapy can be done on a consultation basis, if the parents are able to implement effective treatment at home...which should be the goal when possible. Children always do better with their parents!

    Thank you for visiting and commenting on my site. I appreciate it.

    1. Thanks Bea! I am looking forward to reading more of your blog and hopefully learning some more tricks of the trade! And I appreciate your insight into therapy. I am hoping we'll get to that point soon... before my bank account is drained, ha!